Excluding patients’ preferences in decision-making not only defies the moral ethics of autonomy but also compromise the patient’s well-being and satisfaction with care. Patient-centered care is essential for both safety and satisfaction (Gusmano et al., 2019). According to the Institute of Medicine, patient-centered care is the act of providing care that is responsive to and respectful of patient’s needs, values, preference, and ensuring the client values guide the entire clinical decision.
In August 2019, working as a night nurse at a Florida-based oncology clinic, a male patient was admitted with symptoms of respiratory complication. Upon assessment, the physician discovered signs of lung complication, including coughing up blood, chest pains, hoarseness, shortness of breath, and fatigue (Hirsch et al., 2017). The laboratory’s pathology and biochemical results alongside radiology images confirmed stage 2 lung cancer (malignant cells are found in both the nearby lymph nodes and lungs). The tensed patient recommended chemotherapy as the best procedure since surgery could worsen her condition. As a diabetic patient for the past seven years and staying alone, the patient got worried about the risk of wound infection due to poor hygiene. Also, diabetes mellitus is linked to impaired leukocyte function and metabolic malfunctions. NURS 6052 Patient Preferences and Decision Making Discussion
The physician insisted on surgical removal of the cancerous cells and booked the desperate patient for surgery. After a successful surgery, the patient developed complications, including air leaks in the left lung, damage to the blood vessels and nerves (in the right lung), internal bleeding in the lungs, and severe pain. The patient’s condition deteriorated and later suffered from thromboembolic stroke due to the destruction of blood vessels. The patient was admitted to the hospitals’ Intensive Care Unit (ICU) for specialized care, leading to an extended stay by twelve months with a significant hospital bill to settle (over $30000). The patient was readmitted after two months of discharge, with complaints of severe chest pain and headache. The client gave a negative rating to the facility for creating more harm than good to her condition, indicating dissatisfaction with care.
How Adhering to Patient’s Preference Could Affect the Trajectory and Application in Clinical Practice
Integrating the patient’s ideas and preference in the decision-making process could ensure additional safety by eliminating the occurrence of thromboembolic stroke and surgery-related complications. Also, it could prevent the additional medical cost and possible readmissions alongside reduce the length of hospitalization (David et al., 2018). Patient-centered care could improve the patient’s satisfaction with care, together with the facility’s brand image.
The patient’s decision to undergo chemotherapy could lead to bearable side effects and risks compared to the surgical process. Chemotherapy is painless and involves a combination of drugs, including etoposide and cisplatin, and carboplatin and irinotecan, among others. The symptoms include hair loss, mouth sores, loss of appetite, vomiting and nausea, and diarrhea (Hirsch et al., 2017). Drugs like cisplatin can cause kidney damage. However, doctors give a significant amount of intravenous fluids prior to and after every dose of the drug to prevent such occurrence.
In the healthcare industry, decision-making present challenges to the caregivers due to the unforeseeable repercussions and ethical and medical dilemmas. In future nursing, I will always let the patient’s preference and choice of treatment to reign supreme and guide the entire treatment plan. However, it is important to ensure the patient is capacitated to make sound decisions regarding the preferred line of treatment. For example, despite the clinical expertise, patient-centered care guarantees safety and improve satisfaction with care.
References
David, G., Saynisch, P. A., & Smith-McLallen, A. (2018). The economics of patient-centered care. Journal of health economics, 59, 60-77.
Gusmano, M. K., Maschke, K. J., & Solomon, M. Z. (2019). Patient-centered care, yes; patients as consumers, no. Health Affairs, 38(3), 368-373.
Hirsch, F. R., Scagliotti, G. V., Mulshine, J. L., Kwon, R., Curran Jr, W. J., Wu, Y. L., & Paz-Ares, L. (2017). Lung cancer: current therapies and new targeted treatments. The Lancet, 389(10066), 299-311.
A Sample Answer 5 For the Assignment: NURS 6052 Patient Preferences and Decision Making Discussion
Title: NURS 6052 Patient Preferences and Decision Making Discussion
Three months ago, I had an experience with a 30-year-old female patient who reported in the inpatient cancer treatment facility where I was working as a charge nurse. The patient had breast cancer that had become too severe, leading to chronic pain. After the diagnosis, the patient was incorporated into developing the treatment plan. She was presented with two treatment options for her condition, including mastectomy and breast-conserving surgery as provided in the Decision Aid tool for breast cancer (Ottawa Hospital Research Institute, 2019). According to the patient’s preferences, she opted for removing the breast, which the attending doctor had to respect.
However, during the initiation of the treatment plan, the patient preferred that she be assigned a female caregiver due to her Islamic culture, which the medical team gladly accommodated in the plan. This is because respecting her care preference means that she would comply with the treatment plan. Hence, the patient always remained receptive to the treatment she underwent, ensuring that her anxiety about the type she would receive was eliminated because her preferences were well taken care of throughout the treatment (Mathioudakis et a., 2019). As a result, the treatment was carried out smoothly.
In terms of Decision Aid (DA) selection, it is essential to consider other aspects, such as post-surgical treatments and care as the patient wishes, keeping in her preference to have a female caregiver. Therefore, the application of Evidence-based medicine (EBM) and shared decision making (SDM) would be an appropriate Decision Aid for the patient. The importance of using the DA is that it ensures that the treatment begins and ends with the patient while also focusing on other aspects, such as modesty and self-awareness of the care procedures (Simons et al., 2019).
Applying the DA inventory would be appropriate for my professional practice since it offers a wealth of information on all aspects of clinical care to promote the development of more informed interventions to help address patient conditions. Evidence-based medicine would be a critical tool for my practices because it integrates all the care need that a patient may require. This, in turn, can facilitate proper decision-making on what can work best for the patient.
References
Mathioudakis, A. G., Salakari, M., Pylkkanen, L., Saz‐Parkinson, Z., Bramesfeld, A., Deandrea, S., … & Alonso‐Coello, P. (2019). Systematic review on women’s values and preferences concerning breast cancer screening and diagnostic services. Psycho‐Oncology, 28(5), 939-947.
Simons, M. R., Zurynski, Y., Cullis, J., Morgan, M. K., & Davidson, A. S. (2019). Does evidence-based medicine training improve doctors’ knowledge, practice and patient outcomes? A systematic review of the evidence. Medical teacher, 41(5), 532-538.
The Ottawa Hospital Research Institute. (2019). Patient decision aids. Retrieved from https://decisionaid.ohri.ca/
A Sample Answer 6 For the Assignment: NURS 6052 Patient Preferences and Decision Making Discussion
Title: NURS 6052 Patient Preferences and Decision Making Discussion
The National Kidney Foundation (2020) state that, in the United States, 37 million adults are estimated to have chronic kidney disease, and approximately 90 percent don’t know they have it. Risk factors associated with CKD are diabetes, high blood pressure, heart disease, obesity, and family history. According to Hoffman et al. (2014), evidence-based medicine should begin and end with the patient. For example, when a patient transitions from chronic kidney disease (CKD) to end-stage renal disease (ESRD), the patient is faced with several treatment options that are critical to their survival. These treatments are necessary for the rest of their lives, so patients need to choose the most suitable treatment for them. According to Green et al. (2018) many patients are unprepared for kidney failure treatments—even when they have been under nephrology specialty care for years. Nephrologists are often unable to predict the timing of kidney failure.
Sometimes patients with advanced kidney disease experience rapid decline in kidney function, which leaves little time for a nephrologist to help patients prepare in advance (p. 2). With electronic health records (EHR) and analysis, algorithms predict CKD patient characteristics and laboratory measures. The nephrologist can recognize patient needs or prognosis of kidney transition based on age, gender, eGFR, urine albumin, creatine ration, calcium, phosphorus, albumin, and bicarbonate focus, providing patients with the knowledge, skills, and support in shared decision making (p. 5). Kon et. (2016) note three elements of a shared decision-making (SDM) approach include information exchange, deliberation, and making a treatment decision addressing the patient preference, values, and goals of care (p. 1334). The impact in outcomes is that patients and families who are educated, informed, and supported throughout their diagnosis can better participate in SDM, accommodating their medical needs and preferences, leading to more satisfying outcomes and relationships.
Patient preferences and values
Evidence-based practice requires a patient-centered approach when it comes to decision-making. The Institute of Healthcare Improvement (IHI, 2013) describes “patient-centered” as placing an international focus on patients’ cultural traditions, values, personal preferences, family issues, social circumstances, and lifestyle. This approach leads to better patient engagement and outcomes (Melnyk & Fineout-Overholt, 2019, p.227). The evaluation of factors related to home and family life can make or break a successful care plan; for example, a young family of four with two children under the age of four recently found out that the husband/father needed to start dialysis therapy. This family has already been dealing with financial hardship, unstable marital concerns, and the responsibility of raising two small children. The husband reports a lack of support once starting treatment from his wife, who feels burdened and unappreciated.
He is afraid of losing her and his children and feels burdened with guilt and worry. The family needs a transdisciplinary care plan that focuses on the patient’s best options for treatment (given his current circumstances), including transplant and home therapies. This care plan would include counseling support to help save their marriage and adjust to this new chronic health diagnosis, care management to help provide support, financial guidance and options, and dietician to ensure the patient has the knowledge needed to optimize his therapy. William Osle’s quote, “It is much more important to know what sort of a patient has a disease than what sort of disease a patient has (Melnyk & Fineout-Overholt, 2019, p. 229) embodies the reason why patient preferences and values determine clinical decisions and outcomes.
In healthcare today there are issues of adequacy of informed consent. I have worked many hours on a medical/ surgical unit where surgeries have not been explained thoroughly to patients. Yet, they sign the consent form prior to surgery with unanswered questions. Now, there are always exceptions where informed consent is not required such as in life-threatening emergencies, or if the patient is incapacitated (Shah et al., 2022) But, outside these exceptions, patients need to be made entirely aware of all of the risks involved and given the opportunity to have shared decision making which as defined by Hoffmann et al., is the process when both the healthcare professional and the patient cooperatively participate in the informed consent process (2014). One unfortunate event occurred while I was working on the medical surgical unit where a patient underwent gastric bypass surgery, unfortunately, this patient spent nearly a month in the hospital due to developing peritonitis after this surgery. There were moments when this patient would say if I would have known this could happen, I would have never done this.
I am sure the surgeon explained that there could be the possibility of peritonitis, but did the patient really know what that looked like, or what that even meant? If this patient could have seen what real complications look like or had been given true informed consent the decision might have been different. Utilizing the Ottawa Hospital Decision Aid Inventory, I found an aid about weight loss surgery. I think this could have made a difference because it explains things in layman’s terms and allows the reader to self-reflect on the need for more information about the procedure. It gives a clear outline of comparing the two options including what is involved, benefits, risks, and side effects ( Staff, 2022). Utilizing this tool would help the patient make an informed decision and allow them to incorporate their preferences. It has been proven that shared decision-making is essential to obtaining optimal patient care (Hoffmann et al., 2014) Overall, being able to utilize the decision aid as a tool to help explain risk versus benefits, the process, and without the use of medical jargon will allow the patient to feel more confident in their own shared decision making.
References:
Hoffmann, T. C., Montori, V. M., & Del Mar, C. (2014). The connection between evidence-based medicine and shared decision making. JAMA, 312(13), 1295. https://doi.org/10.1001/jama.2014.10186
Shah, P., Thornton, I., Turrin, D., & Hipskind, J. E. (2022, June 11). Informed consent – statpearls – NCBI bookshelf. National Library of Medicine . Retrieved February 8, 2023, from https://www.ncbi.nlm.nih.gov/books/NBK430827/
Links to an external site.
Staff, H. (2022, August). Obesity: Should I Have Weight-Loss Surgery? Patient decision AIDS – ottawa hospital research institute. Retrieved February 7, 2023, from https://www.healthwise.net/ohridecisionaid/Content/StdDocument.aspx?DOCHWID=ug2364